Consumer genetic technologies: ethical and legal considerations
For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing re...
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| Format: | E-Book |
| Sprache: | Englisch |
| Veröffentlicht: |
Cambridge
Cambridge University Press
2021
|
| Links: | https://doi.org/10.1017/9781108874106 |
| Zusammenfassung: | For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation. |
| Umfang: | 1 Online-Ressource (x, 291 Seiten) |
| ISBN: | 9781108874106 |
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| spelling | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Harvard Law School, Nita A. Farahany, Duke University School of Law, Henry T. Greely, Stanford Law School, Carmel Schachar, Harvard Law School Cambridge Cambridge University Press 2021 1 Online-Ressource (x, 291 Seiten) txt c cr For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation. Cohen, I. Glenn Farahany, Nita A. Greely, Henry T. Schachar, Carmel 1985- Erscheint auch als Druck-Ausgabe 9781108812672 Erscheint auch als Druck-Ausgabe 9781108836616 |
| spellingShingle | Consumer genetic technologies ethical and legal considerations |
| title | Consumer genetic technologies ethical and legal considerations |
| title_auth | Consumer genetic technologies ethical and legal considerations |
| title_exact_search | Consumer genetic technologies ethical and legal considerations |
| title_full | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Harvard Law School, Nita A. Farahany, Duke University School of Law, Henry T. Greely, Stanford Law School, Carmel Schachar, Harvard Law School |
| title_fullStr | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Harvard Law School, Nita A. Farahany, Duke University School of Law, Henry T. Greely, Stanford Law School, Carmel Schachar, Harvard Law School |
| title_full_unstemmed | Consumer genetic technologies ethical and legal considerations edited by I. Glenn Cohen, Harvard Law School, Nita A. Farahany, Duke University School of Law, Henry T. Greely, Stanford Law School, Carmel Schachar, Harvard Law School |
| title_short | Consumer genetic technologies |
| title_sort | consumer genetic technologies ethical and legal considerations |
| title_sub | ethical and legal considerations |
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