Genetic data and the law: a critical perspective on privacy protection
Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal con...
Gespeichert in:
| Beteilige Person: | |
|---|---|
| Format: | E-Book |
| Sprache: | Englisch |
| Veröffentlicht: |
Cambridge
Cambridge University Press
2012
|
| Schriftenreihe: | Cambridge bioethics and law
16 |
| Links: | https://doi.org/10.1017/CBO9780511910128 |
| Zusammenfassung: | Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection. |
| Umfang: | 1 Online-Ressource (xiii, 232 Seiten) |
| ISBN: | 9780511910128 |
Internformat
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| spelling | Taylor, Mark 1973 March 26- Genetic data and the law a critical perspective on privacy protection Mark Taylor Genetic Data & the Law Cambridge Cambridge University Press 2012 1 Online-Ressource (xiii, 232 Seiten) txt c cr Cambridge bioethics and law 16 Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection. Erscheint auch als Druck-Ausgabe 9781107007116 |
| spellingShingle | Taylor, Mark 1973 March 26- Genetic data and the law a critical perspective on privacy protection |
| title | Genetic data and the law a critical perspective on privacy protection |
| title_alt | Genetic Data & the Law |
| title_auth | Genetic data and the law a critical perspective on privacy protection |
| title_exact_search | Genetic data and the law a critical perspective on privacy protection |
| title_full | Genetic data and the law a critical perspective on privacy protection Mark Taylor |
| title_fullStr | Genetic data and the law a critical perspective on privacy protection Mark Taylor |
| title_full_unstemmed | Genetic data and the law a critical perspective on privacy protection Mark Taylor |
| title_short | Genetic data and the law |
| title_sort | genetic data and the law a critical perspective on privacy protection |
| title_sub | a critical perspective on privacy protection |
| work_keys_str_mv | AT taylormark geneticdataandthelawacriticalperspectiveonprivacyprotection AT taylormark geneticdatathelaw |