100 questions (and answers) about research ethics:
Gespeichert in:
| Beteiligte Personen: | , |
|---|---|
| Format: | Buch |
| Sprache: | Englisch |
| Veröffentlicht: |
Los Angeles ; London ; New Delhi ; Singapore ; Washington, DC ; Melbourne
SAGE
[2018]
|
| Schriftenreihe: | Q & A Sage 100 question and answers series
5 |
| Schlagwörter: | |
| Links: | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030379376&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| Beschreibung: | Includes bibliographical references and index |
| Umfang: | XV, 202 Seiten |
| ISBN: | 9781506348704 |
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Datensatz im Suchindex
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Contents
Preface xi
Acknowledgments xiii
About the Authors xv
PART 1: UNDERSTANDING ETHICS IN
RESEARCH WITH HUMAN PARTICIPANTS 1
1. What Is Ethics, and How Does It Apply to
Research With Human Participants? 2
2. What Is the Ethical Justification for Conducting
Research With Human Participants? 4
3. What Broad Ethical Principles Apply to
Research With Human Participants? 3
4. What Ethical Guidance and Regulations
Inform Research With Human Participants, and
What, If Anything, Has Changed Over Time? 6
5. What Is the Relationship Between Ethics and Compliance? 8
6. What Are the Potential Consequences of Ignoring
Ethical Principles and Regulations? 9
7. What Kinds of Research Are Considered Unethical, and
What Are Some Examples of Serious Ethical Lapses in
Social and Behavioral Sciences Research? 11
8. How Do Standard Ethical Practices for Research Vary Among
Academic Disciplines in the Social and Behavioral Sciences? 14
9. Who Is Responsible for Ensuring Research
Is Conducted Ethically? 15
10. When I Begin Developing My Research,
What Ethical Issues Should I First Consider? 17
PART 2: ASSESSING RESEARCH RISKS AND BENEFITS 19
11. What Is Risk, and What Are the Risks in Social and
Behavioral Sciences Research? 20
12. How Do I Identify Risks in My Research—and Minimize Them? 22
13- What Is Meant by “Minimal Risk”? 24
14. What Are the Potential Benefits of Research? 25
15. How Do I Design My Research So That the Risk-Benefit
Balance Is Favorable? 27
16. How Do I Make Sure That Participants in My Research
Do Not Overestimate the Benefits or Underestimate the Risks? 28
17. I Will Conduct Research on a Sensitive Topic. What Should
I Do to Prevent Psychological Harms? 30
PART 3: PROTECTING PRIVACY AND CONFIDENTIALITY 33
18. What Is Meant by “Privacy” and “Confidentiality,” and
Is There a Difference? 34
19. What Makes Data De-Identified? 35
20. What Makes Data Anonymous? 37
21. When Is Information Cor Behavior) Considered
Private Rather Than Public, and How Can Private
Information Be Used in Research? 39
22. What Can I Do to Protect Participants' Privacy
During Data Collection and Reporting? 41
23. What Can I Do to Protect the Confidentiality of
Information Collected? 42
24. When Must I Share Study Data—and Participant
Names—With Individuals Outside of the Research Team? 44
25. What Is a Certificate of Confidentiality? 46
26. What Privacy Laws Must I Follow? 47
PART 4: PROTECTING VULNERABLE POPULATIONS 49
27. What Kinds of Participants Are Considered
Vulnerable in Research, and What Are Some Ways to Protect
Vulnerable Participants? 50
28. What Ethical Issues Should I Consider When Conducting
Research With Prisoners? 54
29. What Ethical Issues Should I Consider When Conducting
Research With Pregnant Women? 57
30. What Ethical Issues Should I Consider When Conducting
Research With Children? 59
31. What Ethical Issues Should I Consider
When Conducting Research With Individuals
Who Have Experienced Traumatic Events?
61
32. What Ethical Issues Should I Consider
When Conducting Research With Adults Who May Lack
Decision-Making Capacity Due to Cognitive Impairment? 63
33- What Ethical Issues Should I Consider When Conducting
Research With Students, Particularly Students Whom I Teach? 65
PART 5: OBTAINING INFORMED CONSENT 67
34. What Is Informed Consent? 68
35. What Is the Informed Consent Process? 69
36. What Is an Informed Consent Form? 71
37. When Is Informed Consent Required? 72
38. What Is the Difference Between Written and Verbal Informed
Consent, and When Can Verbal Informed Consent Be Used? 74
39. What Are the Requirements for Informing
Participants in Research That Is Determined to Be
Exempt From the Federal Regulations? 76
40. What Type of Information Must Be Included in an
Informed Consent Form? 77
41. How Do I Write a Consent Form That Is Easy to Understand? 80
42. How Do I Obtain Informed Consent? 81
43- Who Can Consent to Research Participation? 83
44. What Do I Do With the Consent Form After It Is
Signed by a Participant? 84
45. How Do I Obtain Informed Consent From a Prospective
Participant Who Cannot Read the Consent Form? 85
46. How Do I Obtain Informed Consent From Prospective
Participants Who Speak a Different Language From Mine? 87
47. How Can I Obtain Informed Consent From Individuals
With Cognitive Impairments or Developmental Disabilities? 89
48. How Do I Know If a Prospective Participant
Understands the Research? 91
49- How Do I Ensure That a Participant's Consent Is Voluntary? 93
50. Do I Need to Obtain Informed Consent Before
Asking Screening Questions? 95
51. Do I Need to Obtain Informed Consent
From Individuals to Use Their Existing Data
That Were Collected for Other Purposes?
96
52. How Are Parents Involved in Decision Making
About Their Children’s Participation in Research? 98
53- What Type of Agreement Do I Need From
Children So They Can Participate in Research? 100
54. How Should I Obtain Informed Consent From
Prospective Participants When I’m Conducting
Research Outside the United States? 102
PART 6: DESIGNING ETHICAL RESEARCH 105
55. How Do I Ensure That Eligibility Criteria
Are Appropriate and Fair? 106
56. What Strategies Can I Use to Ethically Recruit
People to Join My Research? 107
57. When Is It Appropriate to Pay Participants for
Taking Part in Research? 110
58. How Do I Determine the Appropriate Amount to
Pay Research Participants? 112
59. What Ethical Issues Should I Consider
When Conducting Focus Group Discussions? 113
60. What Ethical Issues Should I Consider
When Conducting Participant Observations? 115
61. What Are Some of the Ethical Issues Raised by
Deception in Research, and When Is It Ethically
Acceptable to Use Deception? 117
62. What Ethical Issues Should I Consider If
My Intervention Research Includes a Control Group? 119
63. What Ethical Issues Should I Consider
When Conducting Research in a Defined Community? 121
64. What Is the Relationship Between Community
Engagement and Research Ethics? 123
65. What Does Cultural Competence Mean, and
How Do I Apply It to Research Ethics? 126
66. What Ethical Guidelines and Regulations Should I
Consider When Conducting Research in Another Country? 128
PART 7: ADDRESSING ETHICAL ISSUES IN
ONLINE RESEARCH 129
67. Are There Specific Ethical Guidelines for Conducting
Research Online?
130
68. What Ethical Issues Should I Consider
When Recruiting Study Participants Online? 131
69. What Ethical Issues Should I Consider
When Collecting New Data Online? 133
70. What Ethical Issues Should I Consider
When Using Data That Already Exist Online? 135
71. How Do I Document Informed Consent
When Conducting Research Online—and
Ensure That Participants Understand the Research? 137
72. Is It Ethical for Me to Join an Online Discussion Group or
Chat Room for Research Purposes Without Informing
the Group That I’m a Researcher? 139
73. How Do I Verify the Age of Individuals
Who Participate in My Online Research? 141
PART 8: NEGOTIATING THE IRB REVIEW PROCESS 143
74. What Is an IRB, and Who Are the Members? 144
75. How Do I Know If My Study Must Be Reviewed by an IRB? 146
76. How Do I Know Which IRB—and How Many IRBs—Must
Review and Approve My Proposed Research? 148
77. When Is a Research Study “Exempt” From the
Federal Research Regulations, and What Does This Mean? 149
78. What Is Expedited Review? 151
79. What Is the Difference Between Expedited and
Full Board Review? 152
80. What Materials Will I Need to Submit to the IRB? 153
81. What Can I Expect During the IRB Review Process? 155
82. Before IRB Approval, What Can I Do and Not Do? 156
83. What Are Changes That the IRB Can Request, and
How Do I Respond? 158
84. What Should I Do If I Want to Change the Protocol,
Consent Form, or Other Documents After They Have Been
Approved by an IRB? 160
85. What Should I Do If My Research Requires Continuing Review? 162
86. I Am Collecting Data for a Class Project. Do I Need IRB Approval? 164
87. I Am Conducting an Evaluation of a Program.
Do I Need IRB Approval? 165
PART 9: UNDERSTANDING ETHICAL
RESPONSIBILITIES OF DATA USE 167
88. What Confidentiality Procedures Should I Put in Place
After All Data Have Been Collected? 168
89. How Long Must I Keep My Research Records? 169
90. When Can I Destroy My Research Files? 171
91. Do I Have an Ethical Obligation to Publish
My Research Findings? 173
92. Can I Publish My Findings If I Did Not Get IRB Approval or
Obtain Informed Consent From Participants? 174
93. What Do I Need to Do to Ensure That I Protect
Participants’ Identities When Sharing Datasets With Others and
That Participants Are Informed of This Possibility? 175
94. Can I Show Participants Their Transcripts or the
Transcripts of Other Participants? 177
95. Should I Share the Results of My Research
With Study Participants? 179
PART lO: HANDLING ETHICAL ISSUES THAT
ARISE DURING RESEARCH IMPLEMENTATION 181
96. What Should I Do If I—or a Study Staff Member or
Participant—Do Something That Was Not in
the Approved Protocol? 182
97. What Should I Do If Someone Is Physically, Emotionally, or
Socially Harmed From Taking Part in My Research? 184
98. What Should I Do If a Participant Says He Wants to
Harm Himself or Someone Else? 185
99. What Should I Do If I Lose My Field Notes or
Other Hard Copies of Data? 186
100. What Should I Do If a Participant Says a
Person’s Name or the Name of an Organization
During an Interview or Focus Group Discussion? 187
References and Resources
Index
189
197 |
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| isbn | 9781506348704 |
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| spelling | Anderson, Emily E. Verfasser (DE-588)1161808914 aut 100 questions (and answers) about research ethics Emily E. Anderson (Loyola University, Chicago), Amy Corneli (Duke University) One hundred questions (and answers) about research ethics Hundred questions (and answers) about research ethics Los Angeles ; London ; New Delhi ; Singapore ; Washington, DC ; Melbourne SAGE [2018] © 2018 XV, 202 Seiten txt rdacontent n rdamedia nc rdacarrier Q & A Sage 100 question and answers series 5 Includes bibliographical references and index Social sciences Research Moral and ethical aspects Research Moral and ethical aspects Participant observation Moral and ethical aspects Wissenschaftsethik (DE-588)4066602-5 gnd rswk-swf Forschung (DE-588)4017894-8 gnd rswk-swf Forschung (DE-588)4017894-8 s Wissenschaftsethik (DE-588)4066602-5 s DE-604 Corneli, Amy Verfasser (DE-588)1161808981 aut Q & A Sage 100 question and answers series 5 (DE-604)BV045683324 5 Digitalisierung BSB München - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030379376&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Anderson, Emily E. Corneli, Amy 100 questions (and answers) about research ethics Q & A Sage 100 question and answers series Social sciences Research Moral and ethical aspects Research Moral and ethical aspects Participant observation Moral and ethical aspects Wissenschaftsethik (DE-588)4066602-5 gnd Forschung (DE-588)4017894-8 gnd |
| subject_GND | (DE-588)4066602-5 (DE-588)4017894-8 |
| title | 100 questions (and answers) about research ethics |
| title_alt | One hundred questions (and answers) about research ethics Hundred questions (and answers) about research ethics |
| title_auth | 100 questions (and answers) about research ethics |
| title_exact_search | 100 questions (and answers) about research ethics |
| title_full | 100 questions (and answers) about research ethics Emily E. Anderson (Loyola University, Chicago), Amy Corneli (Duke University) |
| title_fullStr | 100 questions (and answers) about research ethics Emily E. Anderson (Loyola University, Chicago), Amy Corneli (Duke University) |
| title_full_unstemmed | 100 questions (and answers) about research ethics Emily E. Anderson (Loyola University, Chicago), Amy Corneli (Duke University) |
| title_short | 100 questions (and answers) about research ethics |
| title_sort | 100 questions and answers about research ethics |
| topic | Social sciences Research Moral and ethical aspects Research Moral and ethical aspects Participant observation Moral and ethical aspects Wissenschaftsethik (DE-588)4066602-5 gnd Forschung (DE-588)4017894-8 gnd |
| topic_facet | Social sciences Research Moral and ethical aspects Research Moral and ethical aspects Participant observation Moral and ethical aspects Wissenschaftsethik Forschung |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=030379376&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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