Big data, health law, and bioethics:
When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improv...
Gespeichert in:
| Weitere beteiligte Personen: | |
|---|---|
| Format: | Elektronisch E-Book |
| Sprache: | Englisch |
| Veröffentlicht: |
Cambridge, United Kingdom
Cambridge University Press
2018
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| Schlagwörter: | |
| Links: | https://doi.org/10.1017/9781108147972 https://doi.org/10.1017/9781108147972 https://doi.org/10.1017/9781108147972 https://doi.org/10.1017/9781108147972 https://doi.org/10.1017/9781108147972 https://doi.org/10.1017/9781108147972 |
| Zusammenfassung: | When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors |
| Umfang: | 1 Online-Ressource (xvii, 354 Seiten) Illustrationen, Diagramme |
| ISBN: | 9781108147972 |
| DOI: | 10.1017/9781108147972 |
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| 505 | 8 | |a Avoiding over-regulation in the medical Internet of things / Dov Greenbaum -- Data policy for Internet of things health care devices : aligning patient, industry, and privacy goals in the age of big data / Marcus Comiter -- Thought leader perspectives on risks in precision medicine research / Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna -- From individual to group privacy in biomedical big data / Brent Mittelstadt -- Big data and informed consent : the case of estimated data / Donna M. Gitter -- Is there a duty to share health care data? / I. Glenn Cohen -- Societal lapses in protecting individual privacy, the common rule, and big data health research / Laura Odwazny -- The common rule and research with data, big and small / Liza Dawson -- Big data, HIPAA and the common rule : time for big change? / Margaret Foster Riley -- Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations / Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss -- Big data and human medical judgment : regulating next generation clinical decision support / Jeffrey M. Senger, Patrick O'Leary -- Medical malpractice and black-box medicine / W. Nicholson Price II -- Big data & intellectual property rights in the health and life sciences / Timo Minssen, Justin Pierce -- The pathologies of data-generating patents / Ted Sichelman, Brenda M. Simon | |
| 520 | |a When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors | ||
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| contents | Avoiding over-regulation in the medical Internet of things / Dov Greenbaum -- Data policy for Internet of things health care devices : aligning patient, industry, and privacy goals in the age of big data / Marcus Comiter -- Thought leader perspectives on risks in precision medicine research / Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna -- From individual to group privacy in biomedical big data / Brent Mittelstadt -- Big data and informed consent : the case of estimated data / Donna M. Gitter -- Is there a duty to share health care data? / I. Glenn Cohen -- Societal lapses in protecting individual privacy, the common rule, and big data health research / Laura Odwazny -- The common rule and research with data, big and small / Liza Dawson -- Big data, HIPAA and the common rule : time for big change? / Margaret Foster Riley -- Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations / Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss -- Big data and human medical judgment : regulating next generation clinical decision support / Jeffrey M. Senger, Patrick O'Leary -- Medical malpractice and black-box medicine / W. Nicholson Price II -- Big data & intellectual property rights in the health and life sciences / Timo Minssen, Justin Pierce -- The pathologies of data-generating patents / Ted Sichelman, Brenda M. Simon |
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| dewey-full | 610.285 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 610 - Medicine and health |
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| dewey-tens | 610 - Medicine and health |
| discipline | Rechtswissenschaft Biologie Informatik Medizin Theologie / Religionswissenschaften |
| doi_str_mv | 10.1017/9781108147972 |
| format | Electronic eBook |
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| publisher | Cambridge University Press |
| record_format | marc |
| spellingShingle | Big data, health law, and bioethics Avoiding over-regulation in the medical Internet of things / Dov Greenbaum -- Data policy for Internet of things health care devices : aligning patient, industry, and privacy goals in the age of big data / Marcus Comiter -- Thought leader perspectives on risks in precision medicine research / Laura M. Beskow, Catherine M. Hammack, Kathleen M. Brelsford, Kevin C. McKenna -- From individual to group privacy in biomedical big data / Brent Mittelstadt -- Big data and informed consent : the case of estimated data / Donna M. Gitter -- Is there a duty to share health care data? / I. Glenn Cohen -- Societal lapses in protecting individual privacy, the common rule, and big data health research / Laura Odwazny -- The common rule and research with data, big and small / Liza Dawson -- Big data, HIPAA and the common rule : time for big change? / Margaret Foster Riley -- Data sharing that enables post-approval drug and device research and protects patient privacy : best practice recommendations / Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim, Joshua J. Gagne, Sebastian Schneeweiss -- Big data and human medical judgment : regulating next generation clinical decision support / Jeffrey M. Senger, Patrick O'Leary -- Medical malpractice and black-box medicine / W. Nicholson Price II -- Big data & intellectual property rights in the health and life sciences / Timo Minssen, Justin Pierce -- The pathologies of data-generating patents / Ted Sichelman, Brenda M. Simon Medical informatics / Data processing Medical records / Data processing Computational biology / Methods Big data Data mining Gesundheitswesen (DE-588)4020775-4 gnd Bioethik (DE-588)4006791-9 gnd Datenanalyse (DE-588)4123037-1 gnd Big Data (DE-588)4802620-7 gnd Personenbezogene Daten (DE-588)4173908-5 gnd |
| subject_GND | (DE-588)4020775-4 (DE-588)4006791-9 (DE-588)4123037-1 (DE-588)4802620-7 (DE-588)4173908-5 (DE-588)4078704-7 (DE-588)4143413-4 |
| title | Big data, health law, and bioethics |
| title_auth | Big data, health law, and bioethics |
| title_exact_search | Big data, health law, and bioethics |
| title_full | Big data, health law, and bioethics edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser |
| title_fullStr | Big data, health law, and bioethics edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser |
| title_full_unstemmed | Big data, health law, and bioethics edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser |
| title_short | Big data, health law, and bioethics |
| title_sort | big data health law and bioethics |
| topic | Medical informatics / Data processing Medical records / Data processing Computational biology / Methods Big data Data mining Gesundheitswesen (DE-588)4020775-4 gnd Bioethik (DE-588)4006791-9 gnd Datenanalyse (DE-588)4123037-1 gnd Big Data (DE-588)4802620-7 gnd Personenbezogene Daten (DE-588)4173908-5 gnd |
| topic_facet | Medical informatics / Data processing Medical records / Data processing Computational biology / Methods Big data Data mining Gesundheitswesen Bioethik Datenanalyse Big Data Personenbezogene Daten USA Aufsatzsammlung |
| url | https://doi.org/10.1017/9781108147972 |
| work_keys_str_mv | AT coheniglenn bigdatahealthlawandbioethics |