Big Data, health law, and bioethics:
Gespeichert in:
| Beteilige Person: | |
|---|---|
| Weitere beteiligte Personen: | , , |
| Format: | Buch |
| Sprache: | Englisch |
| Veröffentlicht: |
Cambridge
Cambridge University Press
[2018]
|
| Schlagwörter: | |
| Links: | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029927826&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029927826&sequence=000003&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| Beschreibung: | Hier auch später erschienene, unveränderte Nachdrucke (3. print 2019). - Contents: "Introduction: I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, and Urs Gasser ; Part V,14: I. Glenn Cohen". - Contributors: "Jerry Avorn [und 38 weitere]" |
| Umfang: | xvii, 354 Seiten |
| ISBN: | 9781107193659 9781108449670 |
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Datensatz im Suchindex
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| adam_text | BIG DATA, HEALTH LAW, AND BIOETHICS
/ /
: : 2018
TABLE OF CONTENTS / INHALTSVERZEICHNIS
AVOIDING OVER-REGULATION IN THE MEDICAL INTERNET OF THINGS / DOV
GREENBAUM
DATA POLICY FOR INTERNET OF THINGS HEALTH CARE DEVICES : ALIGNING
PATIENT, INDUSTRY, AND PRIVACY GOALS IN THE AGE OF BIG DATA / MARCUS
COMITER
THOUGHT LEADER PERSPECTIVES ON RISKS IN PRECISION MEDICINE RESEARCH /
LAURA M. BESKOW, CATHERINE M. HAMMACK, KATHLEEN M. BRELSFORD, KEVIN C.
MCKENNA
FROM INDIVIDUAL TO GROUP PRIVACY IN BIOMEDICAL BIG DATA / BRENT
MITTELSTADT
BIG DATA AND INFORMED CONSENT : THE CASE OF ESTIMATED DATA / DONNA M.
GITTER
IS THERE A DUTY TO SHARE HEALTH CARE DATA? / I. GLENN COHEN
SOCIETAL LAPSES IN PROTECTING INDIVIDUAL PRIVACY, THE COMMON RULE, AND
BIG DATA HEALTH RESEARCH / LAURA ODWAZNY
THE COMMON RULE AND RESEARCH WITH DATA, BIG AND SMALL / LIZA DAWSON
BIG DATA, HIPAA AND THE COMMON RULE : TIME FOR BIG CHANGE? / MARGARET
FOSTER RILEY
DATA SHARING THAT ENABLES POST-APPROVAL DRUG AND DEVICE RESEARCH AND
PROTECTS PATIENT PRIVACY : BEST PRACTICE RECOMMENDATIONS / AMEET
SARPATWARI, BRADLEY A. MALIN, AARON S. KESSELHEIM, JOSHUA J. GAGNE,
SEBASTIAN SCHNEEWEISS
BIG DATA AND HUMAN MEDICAL JUDGMENT : REGULATING NEXT GENERATION
CLINICAL DECISION SUPPORT / JEFFREY M. SENGER, PATRICK O LEARY
MEDICAL MALPRACTICE AND BLACK-BOX MEDICINE / W. NICHOLSON PRICE II
BIG DATA & INTELLECTUAL PROPERTY RIGHTS IN THE HEALTH AND LIFE SCIENCES
/ TIMO MINSSEN, JUSTIN PIERCE
THE PATHOLOGIES OF DATA-GENERATING PATENTS / TED SICHELMAN, BRENDA M.
SIMON
DIESES SCHRIFTSTUECK WURDE MASCHINELL ERZEUGT.
Contents
List of Editors and Contributors page xi
Acknowledgments xvii
Introduction 1
I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena,
and Urs Gasser
PART I SHIFTING PARADIGMS: BIG DATA S IMPACT
ON HEALTH LAW AND BIOETHICS 15
Introduction 15
Urs Gasser
1 Big Data and Individual Autonomy in a Crowd 19
Barbara J. Evans
2 Big Data s Epistemology and Its Implications for Precision
Medicine and Privacy 30
Jeffrey M. Skopek *
3 Correlation versus Causation in Health-Related Big Data
Analysis: The Role of Reason and Regulation 42
Tal Z. Zarsky
/
4 Big Data and Regulatory Arbitrage in Healthcare 56
Nicolas P. Terry
PART II OVERCOMING THE DOWNSIDES OF BIG DATA 69
Introduction 69
I. Glenn Cohen
vii
viii Contents
5 The Future of Pharmacovigilance: Big Data and the False
Claims Act
Efthimios Parasidis
6 Big Data’s New Discrimination Threats: Amending the
Americans with Disabilities Act to Cover Discrimination
Based on Data-Driven Predictions of Future Disease
Sharona Hoffman
7 Who’s Left Out of Big Data? How Big Data Collection,
Analysis, and Use Neglect Populations Most in Need of Medical
and Public Health Research and Interventions
Sarah E. Malanga, Jonathan D. Loe, Christopher T. Robertson,
and Kenneth S. Ramos
8 Potential Roadblocks in Healthcare Big Data Collection:
Gobeille v. Liberty Mutual, ERISA, and All-Payer
Claims Databases
Carmel Shachar, Aaron S. Kesselheim, Gregory Curfman,
and Ameet Sarpatwari
PART III THE INTERNET OF THINGS (lOT) AND HEALTH
BIG DATA
Introduction
Nathan Cortez
9 Avoiding Overregulation in the Medical Internet of Things
Dov Greenbaum
10 Data Policy for Internet of Things Healthcare Devices: Aligning
Patient, Industry, and Privacy Goals in the Age of Big Data
Marcus Comiter
PART IV PROTECTING HEALTH PRIVACY IN THE WORLD OF
BIG DATA
Introduction
Effy Vayena
n Thought-Leader Perspectives on Risks in Precision
Medicine Research
Laura M. Beskow, Catherine M. Hammack, Kathleen
M. Brelsford, and Kevin C. McKenna
73
85
98
112
125
125
129
142
*57
*57
161
Contents ix
12 From Individual to Group Privacy in Biomedical Big Data 175
Brent Mittelstadt
13 Big Data and Informed Consent: The Case of Estimated Data 193
Donna M. Gitter
PART V OVERSIGHT OF BIG DATA HEALTH RESEARCH:
PROPOSALS FOR IMPROVEMENT 205
Introduction 205
Holly Fernandez Lynch
14 Is There a Duty to Share Healthcare Data? 209
I. Glenn Cohen
15 Societal Lapses in Protecting Individual Privacy, the Common
Rule, and Big Data Health Research 223
Laura Odwazny
16 The Common Rule and Research with Data, Big and Small 237
Liza Dawson
17 Big Data, HIPAA, and the Common Rule: Time for Big Change? 251
Margaret Foster Riley
PART VI BIG DATA, FDA, AND LIABILITY CONSIDERATIONS 265
Introduction 265
Jerry Avom
18 Data Sharing that Enables Postapproval Drug and Device
Research and Protects Patient Privacy: Best Practice
Recommendations 269
Ameet Sarpatwari, Bradley A. Malin, Aaron S. Kesselheim,
Joshua J. Gagne, and Sebastian Schneeweiss
19 Big Data and Human Medical Judgment: Regulating
Next-Generation Clinical Decision Support * 283
Jeffrey M, Senger and Patrick O Leary
20 Medical Malpractice and Black-Box Medicine 295
W. Nicholson Price II
PART VII INTELLECTUAL PROPERTY RIGHTS FOR HEALTH
BIG DATA 307
Introduction 307
Rachel E. Sachs
X
Contents
21 Big Data and Intellectual Property Rights in the Health and
Life Sciences 311
Timo Minssen and Justin Pierce
22 The Pathologies of Data-Generating Patents 324
Ted Sichelman and Brenda M. Simon
Epilogue: Professional Cooperation and Rivalry in the Future
of Data-Driven Healthcare 337
Frank Pasquale
Index 341
|
| any_adam_object | 1 |
| author | Cohen, I. Glenn 1978- |
| author2 | Cohen, I. Glenn 1978- Lynch, Holly Fernandez Vayena, Effy 1972- Gasser, Urs 1972- |
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| discipline | Rechtswissenschaft Informatik Soziologie Theologie / Religionswissenschaften |
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| indexdate | 2024-12-20T18:05:14Z |
| institution | BVB |
| isbn | 9781107193659 9781108449670 |
| language | English |
| lccn | 017041362 |
| oai_aleph_id | oai:aleph.bib-bvb.de:BVB01-029927826 |
| oclc_num | 1031436037 |
| open_access_boolean | |
| owner | DE-M382 DE-384 DE-824 DE-12 DE-19 DE-BY-UBM DE-188 DE-355 DE-BY-UBR DE-1050 DE-521 DE-578 |
| owner_facet | DE-M382 DE-384 DE-824 DE-12 DE-19 DE-BY-UBM DE-188 DE-355 DE-BY-UBR DE-1050 DE-521 DE-578 |
| physical | xvii, 354 Seiten |
| publishDate | 2018 |
| publishDateSearch | 2018 |
| publishDateSort | 2018 |
| publisher | Cambridge University Press |
| record_format | marc |
| spellingShingle | Cohen, I. Glenn 1978- Big Data, health law, and bioethics Data Mining Health Policy Legislation, Medical Bioethical Issues Privacy Gesundheitswesen (DE-588)4020775-4 gnd Bioethik (DE-588)4006791-9 gnd Personenbezogene Daten (DE-588)4173908-5 gnd Datenanalyse (DE-588)4123037-1 gnd Big Data (DE-588)4802620-7 gnd |
| subject_GND | (DE-588)4020775-4 (DE-588)4006791-9 (DE-588)4173908-5 (DE-588)4123037-1 (DE-588)4802620-7 (DE-588)4078704-7 (DE-588)4143413-4 |
| title | Big Data, health law, and bioethics |
| title_auth | Big Data, health law, and bioethics |
| title_exact_search | Big Data, health law, and bioethics |
| title_full | Big Data, health law, and bioethics edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser |
| title_fullStr | Big Data, health law, and bioethics edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser |
| title_full_unstemmed | Big Data, health law, and bioethics edited by I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena, Urs Gasser |
| title_short | Big Data, health law, and bioethics |
| title_sort | big data health law and bioethics |
| topic | Data Mining Health Policy Legislation, Medical Bioethical Issues Privacy Gesundheitswesen (DE-588)4020775-4 gnd Bioethik (DE-588)4006791-9 gnd Personenbezogene Daten (DE-588)4173908-5 gnd Datenanalyse (DE-588)4123037-1 gnd Big Data (DE-588)4802620-7 gnd |
| topic_facet | Data Mining Health Policy Legislation, Medical Bioethical Issues Privacy Gesundheitswesen Bioethik Personenbezogene Daten Datenanalyse Big Data USA United States Aufsatzsammlung |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029927826&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029927826&sequence=000003&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| work_keys_str_mv | AT coheniglenn bigdatahealthlawandbioethics AT lynchhollyfernandez bigdatahealthlawandbioethics AT vayenaeffy bigdatahealthlawandbioethics AT gasserurs bigdatahealthlawandbioethics |