Personalized medicine: empowered patients in the 21st century?
Gespeichert in:
| Beteilige Person: | |
|---|---|
| Format: | Buch |
| Sprache: | Englisch |
| Veröffentlicht: |
New York
New York University Press
[2017]
|
| Schriftenreihe: | Biopolitics: medicine, technoscience, and health in the 21st century
|
| Schlagwörter: | |
| Links: | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029747951&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029747951&sequence=000002&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| Beschreibung: | Includes bibliographical references and index |
| Umfang: | xvi, 271 Seiten Illustrationen |
| ISBN: | 9781479814879 9781479814589 |
Internformat
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Datensatz im Suchindex
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|---|---|
| adam_text | CONTENTS
Preface and Acknowledgments vii
List of Figures, Boxes, and Tables xi
Technical Terms and Acronyms xiii
1. Setting the Stage for Personalized Medicine 1
2. The Patient Researcher 15
3. Always On: The Transmitting Patient 46
4. Beyond Empowerment 75
5. Just Profit? 107
6. Beyond Individualism 135
7. The Social Life of Evidence in Personalized Medicine 155
8. Conclusion: Patient Work in the Context of Personalization 187
Notes 209
References 217
Index 259
About the Author 271
Personalized Medicine investigates the recent movement for patients Involvement in how
they are treated, diagnosed, and medicated, a movement that accompanies the increasingly
popular idea that people should be proactive and well-informed participants in their own
health care. While it is often the case that participatory practices in medicine are celebrated as
instances of patient empowerment or, alternatively, are dismissed as cases of patient exploi-
tation, Barbara Prainsack challenges these views to illustrate how personalized medicine
can give rise to a technology-focused individualism yet also present new opportunities to
strengthen solidarity. Facing the future, this book reveals how medicine informed by digital,
quantified, and computable information underpins the personalization movement, provid-
ing a contemporary twist on how medical symptoms or ailments are shared and discussed in
society.
Bringing together empirical work and critical scholarship from medicine, public health,
data governance, bioethics, and digital sociology. Personalized Medicine analyzes the chal-
lenges of personalization driven by patient work and data. This compelling volume proposes
an alternative understanding of personalization that uses novel technological practices to
foreground the needs and interests of patients instead of being ruled by these technologies.
BARBARA PRAINSACK is Professor of Political Science at the University of Vienna, and
Professor of Global Health and Social Medicine at King s College London. She is the co-editor
of several volumes as well as co-author of Genetic Suspects: Global Governance of Forensic
DNA Profiling and Databasing and Solidarity in Bioethics and Beyond.
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| illustrated | Illustrated |
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| institution | BVB |
| isbn | 9781479814879 9781479814589 |
| language | English |
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| publishDate | 2017 |
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| series2 | Biopolitics: medicine, technoscience, and health in the 21st century |
| spellingShingle | Prainsack, Barbara 1975- Personalized medicine empowered patients in the 21st century? Personalized medicine 21st century Pharmacogenetics Patient (DE-588)4044903-8 gnd Individualisierte Medizin (DE-588)7660544-9 gnd Empowerment (DE-588)4474644-1 gnd |
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| title | Personalized medicine empowered patients in the 21st century? |
| title_auth | Personalized medicine empowered patients in the 21st century? |
| title_exact_search | Personalized medicine empowered patients in the 21st century? |
| title_full | Personalized medicine empowered patients in the 21st century? Barbara Prainsack |
| title_fullStr | Personalized medicine empowered patients in the 21st century? Barbara Prainsack |
| title_full_unstemmed | Personalized medicine empowered patients in the 21st century? Barbara Prainsack |
| title_short | Personalized medicine |
| title_sort | personalized medicine empowered patients in the 21st century |
| title_sub | empowered patients in the 21st century? |
| topic | Personalized medicine 21st century Pharmacogenetics Patient (DE-588)4044903-8 gnd Individualisierte Medizin (DE-588)7660544-9 gnd Empowerment (DE-588)4474644-1 gnd |
| topic_facet | Personalized medicine 21st century Pharmacogenetics Patient Individualisierte Medizin Empowerment |
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