The disability studies reader:
Saved in:
| Other Authors: | |
|---|---|
| Format: | Book |
| Language: | English |
| Published: |
New York ; London
Routledge
2017
|
| Edition: | Fifth edition |
| Subjects: | |
| Links: | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=029647022&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| Item Description: | Auf der vorderen Umschlagseite: "edited by Lennard J. Davis" Literaturangaben |
| Physical Description: | xv, 554 Seiten |
| ISBN: | 9781138930230 9781138930223 |
Staff View
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| adam_text | CONTENTS
Preface to the Fifth Edition
1 Introduction: Disability, Normality, and Power
Lennard J. Davis
This essay lays out how normality came to hold powerful sway over the way we think about
the mind and body. Calling on scholars and students to rethink the disabled body so as to
open up alternative readings of culture and , Davis signals the critical approach to
this Reader in general while discussing historical and social perspectives in particular.
PART I: HISTORICAL PERSPECTIVES
2 Disability and the Justification of Inequality in American History
Douglas C. Baynton
Discusses how disability is used to justify discrimination against marginalized groups
in America, surveying three great citizenship debates of the nineteenth and early
twentieth centuries: women s suffrage, African American freedom, and the restriction
of immigration.
3 “Heaven’s Special Child”: The Making of Poster Children
Paul K. Longmore
An examination of the history of telethons describing them as cultural mechanisms that
display poster children to evoke sympathy and profit. While the child becomes a celebrity in
the eyes of the public, he or she also can be construed as an exploited spectacle.
4 Disabled Upon Arrival: The Rhetorical Construction of Disability and
Race at Ellis Island
Iay Dolmage
| CONTENTS
As many as 40 percent of current Americans can trace their ancestry to Ellis Island, a place
that Jay Dolmage asks us to consider as a “rhetorical space. ” Dolmage argues that the
policies and practices at Ellis Island created new and influential ways of seeing the body
and categorizing deviations.
PART II: THE POLITICS OF DISABILITY
5 Disability Rights and Selective Abortion 73
Marsha Saxton
Saxton alerts readers to the possible conflict between the goals of the abortion rights
movement and that of the disability rights movement, and she proposes goals for both
that might bring their aspirations in line with one another.
6 Disability, Democracy, and the New Genetics 87
Michael Berube
Does prenatal testing for genetic diseases fit in with our notions of democracy? Would it be
in the interests of a democratic culture to promote or restrict the rights of parents to select
the child they want, particularly when it comes to disability?
7 A Mad Fight: Psychiatry and Disability Activism 102
Bradley Lewis
Locates disability activism in the Mad Pride movement which fights for the rights of
psychiatric survivors and consumers of mental health services.
8 “The Institution Yet to Come”: Analyzing Incarceration Through a Disability Lens 119
Liat Ben-Moshe
This essay analyzes the reality of incarceration through the prism of disability by
comparing health institutions to prisons. Both structures house people plagued by
psychiatric, intellectual, and physical disabilities, and both also produce either aboli-
tionists, those who are against or escape the system, or Foucauldian docile bodies, those
who conform to the system. Ben-Moshe suggests the pressing need to expand notions of
what comes to be classified as “incarceration.”
PART III: STIGMA AND ILLNESS
9 Selections from Stigma 133
Erving Goffman
In these passages from Stigma, Erving Goffman suggests that a stigma is really a special
kind of relation between an attribute and the stereotype that causes a person to be “dis-
credited” by others. Drawing on the testimony of stigmatized individuals, Goffman focuses
on the moments of interaction between the stigmatized and “normals.”
CONTENTS | vii
10 Stigma: An Enigma Demystified 145
Lerita M. Coleman-Brown
Examines Erving Coffmans key concept of “stigma” from a disability studies
perspective.
11 Unhealthy Disabled: Treating Chronic Illnesses as Disabilities 160
Susan Wendell
Chronic illness is a major cause of disability, especially in women. Therefore, any
adequate feminist understanding of disability must encompass chronic illnesses.
Wendell argues that there are important differences between healthy disabled and
unhealthy disabled people that are likely to affect such issues as treatment of impairment
in disability and feminist politics, accommodation of disability in activism and
employment, identification of persons as disabled, disability pride, and prevention
and “cure” of disabilities.
PART IV: THEORIZING DISABILITY
12 What s So “Critical” about Critical Disability Studies? 175
Helen Meekosha and Russell Shuttleworth
Critical Disability Studies, or CDS, is increasingly becoming the preferred name for the
work of disability scholars. In this chapter, Helen Meekosha and Russell Shuttleworth
investigate whether this renaming is the signal of a paradigm shift or simply the
maturation of the discipline.
13 The Social Model of Disability 195
Tom Shakespeare
A description of the social model and a criticism of some aspects of that paradigm.
14 Narrative Prosthesis 204
David Mitchell and Sharon Snyder
The authors develop the idea that narrative requires disability as an essential component
of storytelling, particularly so the plot can fix or cure the impairment.
15 Aesthetic Nervousness 219
Ato Quayson
Coining a new term—“aesthetic nervousness”—Quayson theorizes the crisis resulting
from the inclusion of disability in literary or dramatic works.
16 The Unexceptional Schizophrenic: A Post-Postmodern Introduction 232
Catherine Prendergast
viii I CONTENTS
This essay argues that postmodernism has failed to deconstruct the schizophrenic
keeping a monolithic view based on some canonical writings rather than seeing the
schizophrenic as part of a new emerging group that is active, multivocal, and seeking to
fight for its rights.
17 Deaf Studies in the 21st Century: “Deaf-Gain” and the Future of
Human Diversity 242
H-Dirksen L. Bauman and Joseph J. Murray
This essay provides an overview of the field of Deaf Studies as it has emerged in the latter
part of the 20th century, and then provides a new rhetorical frame for future directions
that this field may take in the 21st century, the cultural attitude shifting from “hearing
loss to “Deaf gain. uDeaf-gain}} provides a rationale for the positive side of sign language
and the continuing existence of Deaf culture.
18 Aesthetic Blindness: Symbolism, Realism, and Reality 256
David Bolt
For David Bolt, understanding aesthetics can be important in revealing the principles that
socially disqualify and oppress disabled people. In this essay he argues that aesthetic
blindness produces an ocularcentric social aesthetic—an aesthetic that disqualifies dis-
abled people.
19 Life with Dead Metaphors: Impairment Rhetoric in Social Justice Praxis 269
Tanya Titchkosky
Tanya Titchkosky points out that many scholars who work for social justice still repeat-
edly use terminology, such as being “color blindn or “deaf to the call of justice, that relies
on ableism. In this chapter, she seeks to understand how socially aware people and their
movements seem to need impairment rhetoric to drive social justice.
20 At the Same Time, Out of Time: Ashley X 282
Alison Kafer
Alison Kafer focuses on the well-publicized case of a girl named Ashley X who was
given estrogen treatments and surgery to stop her growth into puberty. The case
offers an illustration of how disability is often understood as a kind of disruption in time.
Kafer argues that Ashley s parents and doctors justified her treatment by holding
her imagined future body-one that they believed grew out of sync with Ashley s
mind—against her.
21 Centering Justice on Dependency and Recovering Freedom 305
Eva Feder Kittay
In Eva Feder Kittay s view, justice provides the fair terms of social life, given our mutual
and inevitable dependency on one another. The way to include disabled people in a model
of justice is to focus on the vulnerability of all human beings.
CONTENTS |
IX
PARTY: IDENTITIES AND INTERSECTIONALITIES
22 Disability and the Theory of Complex Embodiment: For Identity Politics
in a New Register
Tobin Siebers
Using the ideas of post-positivist realism, Siebers argues that disability is a valid and
actual identity as opposed to a deconstructive-driven model.
313
23 Defining Mental Disability
333
Margaret Price
The contested boundaries between disability, illness, and mental illness are discussed in
terms of mental disability. Ultimately, Price argues that higher education would benefit
from practices that create a more accessible academic world for those who may have able
bodies but disabled minds. The excerpt included here explores the confines of naming and
defining Mental Disability, offering a biographical account of the author’s academic
Ellen Samuels
This essay discusses the coming-out discourse in the context of a person whose physical
appearance does not immediately signal a disability. Considering the complicated
dynamics inherent in the analogizing of social identities, the politics of visibility and
invisibility, and focusing on two “invisible” identities oflesbian-femme and nonvisible
disability, Samuels “queers” disability in order to develop new paradigms of identity,
representation, and social interaction.
25 Integrating Disability, Transforming Feminist Theory 360
Rosemarie Garland-Thomson
This essay applies the insights of disability studies to feminist theory.
26 Unspeakable Offenses: Untangling Race and Disability in
Discourses of Intersectionality 381
Nirmala Erevelles and Andrea Minear
Erevelles and Minear draw on narratives exemplifying the intersections between race,
class, gender, and disability. Through the stories of Eleanor Bumpurs, Junius Wilson, and
Cassie and Aliya Smith, the margins of multiple identity categories are placed at the
forefront, outlining how and why individuals of categorical intersectionality are
constituted as non-citizens and (no)bodies by the very social institutions (legal,
educational, and rehabilitational) that are designed to protect, nurture, and
empower them.
journey.
24 My Body, My Closet: Invisible Disability and the Limits of
Coming Out
343
| CONTENTS
27 Compulsory Able-Bodiedness and Queer/Disabled Existence
Robert McRuer
This essay points to the mutually reinforcing nature of heterosexuality and able-
bodiedness, arguing that disability studies might benefit by adopting some of the
strategies of queer theory.
28 Is Disability Studies Actually White Disability Studies?
Chris Bell
Does the field of Disability Studies “whitewash” disability history, ontology and
phenomenology? In this essay, Chris Bell proposes that the field is better labeled as
White Disability Studies because of its failure to engage issues of race and ethnicity
in a substantive capacity.
29 Token of Approval
Harilyn Rousso
Harilyn Rousso describes her experiences working in a feminist group while also trying
to represent the disability rights community. In this essay she suggests that women’s
organizations and others like them become truly inclusive of disability only very
slowly—if at all.
PART VI: DISABILITY AND CULTURE
30 Sculpting Body Ideals: Alison Lapper Pregnant and the Public Display
of Disability
Ann Millett-Gallant
The author of this essay ponders how Alison Lapper’s monumental self-portrait statue of
her pregnant, non-normative, nude body fits into the history and culture of public art.
31 Blindness and Visual Culture: An Eyewitness Account
Georgina Kleege
Kleege critiques philosophers and critics who have exploited the concept of blindness
as a convenient conceptual device, erasing the nuances and complexities of blind
experience.
32 Disability, Life Narrative, and Representation
G. Thomas Couser
Disability has become a major theme in memoirs and otherforms of life-writing, opening
up that experience to readers and taking control of the representation.
CONTENTS |
XI
33 Why Disability Identity Matters: From Dramaturgy to Casting in
John Belluso’s Pyretoum 454
Carrie Sandahl
Carrie Sandahl addresses the use of disability in dramaturgy at both the level of the play
(the words and actions of the play) and the production (who is employed and cast in the
making of the play). In this chapter, she focuses on disabled playwright John Belluso and
describes a “watershed moment in the entertainment industry for disabled actors,
directors, writers, and producers.
34 The Autistic Victim: Of Mice and Men 470
Sonya Freeman Loftis
In this chapter, Sonya Freeman Loftis identifies the “fluid boundary between fiction and
reality when it comes to killing autistic characters and the way autistic people are treated
in the real world. She examines the well-known character ofLennie Small from John
Steinbeck’s Of Mice and Men to argue for better acknowledgment of subjectivity for
autistic characters.
PART VII: FICTION, MEMOIR, AND POETRY
35 Stones in My Pockets, Stones in My Heart 483
Eli Clare
A memoir that explores the way the author’s disability, queer identity, and memories of
childhood sexual abuse intersect with and thread through one another.
36 Unspeakable Conversations 494
Harriet McBryde Johnson
An account by the disabled writer who meets and argues with utilitarian philosopher
Peter Singer, himself an advocate for withdrawing life support from severely disabled
people.
37 “I am Not One of The” and ‘‘Cripple Lullaby” 507
Cheryl Marie Wade
Poems that explore issues of identity and self-definition from a disabled perspective.
38 Selections from Planet of the Blind 510
Steve Kuusisto
Memoir by the poet/writer of being a teenage boy with limited eyesight and an expansive
imagination.
CONTENTS
xii
39 “The Magic Wand”
Lynn Manning
In “The Magic Wand, Lynn Manning focuses on a moment of disclosing his disability— I
whip out my folded cane”—that brings his identity as a black man into relief with his
identity as a blind man.
40 “Biohack Manifesto”
JlLUAN WEISE
Jillian Weise’s 2015 poem “Biohack Manifesto investigates notions of dysfunctionality,
poetry, and the body.
List of Contributors
Credit Lines
517
519
522
528
Index
531
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