The birth of a genetics policy: social issues of newborn screening
Gespeichert in:
| Beteilige Person: | |
|---|---|
| Format: | Buch |
| Sprache: | Englisch Französisch |
| Veröffentlicht: |
Farnham
Ashgate Publ.
2014
|
| Schlagwörter: | |
| Links: | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=026910888&sequence=000002&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| Beschreibung: | Includes bibliographical references and index |
| Umfang: | XI, 228 S. |
| ISBN: | 9781472422729 |
Internformat
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| 650 | 4 | |a Politik | |
| 650 | 4 | |a Cystic fibrosis in children |x Diagnosis |z France | |
| 650 | 4 | |a Newborn infants |x Diseases |x Diagnosis |z France | |
| 650 | 4 | |a Medical screening |z France | |
| 650 | 4 | |a Medical genetics |x Government policy |z France | |
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Datensatz im Suchindex
| _version_ | 1819330225485381632 |
|---|---|
| adam_text | Titel: The birth of a genetics policy
Autor: Vailly, Joëlle
Jahr: 2014
Contents
List of Abbreviations vii
Preface ix
Introduction 1
The Importance of Health Issues and How Those Issues
Are Evolving 5
An Analytical Framework 7
Screening Newborns 9
Presentation of the Study 13
1 The Birth of a Screening Policy (Brittany-France) 21
A Breton Tale 23
History of a National Debate 44
2 On Scientific Grounds 57
When Conviction Prevails 61
Looking for Evidence 68
3 Governing 87
Power Relations 91
Governing in Time and Space 99
4 Extending Abnormality 119
Techniques and Biological Abnormality 122
Managing Uncertainty 129
5 Living with the Disease 143
Paediatric Semantic Networks 146
Social Life and Biological Life 154
6 Maintaining a Quality Life 169
Gaining Time and Passing Time 170
The Impact of Newborn Screening on Prenatal Diagnosis 182
Conclusion 197
References 207
Index 223
|
| any_adam_object | 1 |
| author | Vailly, Joe͏̈lle |
| author_facet | Vailly, Joe͏̈lle |
| author_role | aut |
| author_sort | Vailly, Joe͏̈lle |
| author_variant | j v jv |
| building | Verbundindex |
| bvnumber | BV041464612 |
| callnumber-first | R - Medicine |
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| callnumber-sort | RJ 3456 C9 |
| callnumber-subject | RJ - Pediatrics |
| ctrlnum | (OCoLC)869855480 (DE-599)BVBBV041464612 |
| dewey-full | 618.9237200944 |
| dewey-hundreds | 600 - Technology (Applied sciences) |
| dewey-ones | 618 - Gynecology, obstetrics, pediatrics, geriatrics |
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| dewey-search | 618.9237200944 |
| dewey-sort | 3618.9237200944 |
| dewey-tens | 610 - Medicine and health |
| discipline | Medizin |
| era | Geschichte 1985-2005 gnd |
| era_facet | Geschichte 1985-2005 |
| format | Book |
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| indexdate | 2024-12-20T16:47:58Z |
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| language | English French |
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| physical | XI, 228 S. |
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| spellingShingle | Vailly, Joe͏̈lle The birth of a genetics policy social issues of newborn screening Politik Cystic fibrosis in children Diagnosis France Newborn infants Diseases Diagnosis France Medical screening France Medical genetics Government policy France Politik (DE-588)4046514-7 gnd Neugeborenes (DE-588)4041781-5 gnd Bioethik (DE-588)4006791-9 gnd Mukoviszidose (DE-588)4040669-6 gnd Screening (DE-588)4054045-5 gnd Humangenetik (DE-588)4072653-8 gnd |
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| title | The birth of a genetics policy social issues of newborn screening |
| title_alt | Naissance d'une politique de la génétique |
| title_auth | The birth of a genetics policy social issues of newborn screening |
| title_exact_search | The birth of a genetics policy social issues of newborn screening |
| title_full | The birth of a genetics policy social issues of newborn screening Joëlle Vailly |
| title_fullStr | The birth of a genetics policy social issues of newborn screening Joëlle Vailly |
| title_full_unstemmed | The birth of a genetics policy social issues of newborn screening Joëlle Vailly |
| title_short | The birth of a genetics policy |
| title_sort | the birth of a genetics policy social issues of newborn screening |
| title_sub | social issues of newborn screening |
| topic | Politik Cystic fibrosis in children Diagnosis France Newborn infants Diseases Diagnosis France Medical screening France Medical genetics Government policy France Politik (DE-588)4046514-7 gnd Neugeborenes (DE-588)4041781-5 gnd Bioethik (DE-588)4006791-9 gnd Mukoviszidose (DE-588)4040669-6 gnd Screening (DE-588)4054045-5 gnd Humangenetik (DE-588)4072653-8 gnd |
| topic_facet | Politik Cystic fibrosis in children Diagnosis France Newborn infants Diseases Diagnosis France Medical screening France Medical genetics Government policy France Neugeborenes Bioethik Mukoviszidose Screening Humangenetik Frankreich |
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