Genetic discrimination and genetic privacy in a comparative perspective:
Gespeichert in:
| Beteiligte Personen: | , , |
|---|---|
| Format: | Buch |
| Sprache: | Englisch |
| Veröffentlicht: |
Antwerp [u.a.]
Intersentia [u.a.]
2005
|
| Schriftenreihe: | Ius commune Europaeum
|
| Links: | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=014680200&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
| Umfang: | XI, 241 S. |
| ISBN: | 9050954529 |
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| 245 | 1 | 0 | |a Genetic discrimination and genetic privacy in a comparative perspective |c J. H. Gerards ; A. W. Heringa ; H. L. Janssen |
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Datensatz im Suchindex
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| adam_text | J.H. GERARDS A.W. HERINGA H.L. JANSSEN GENETIC DISCRIMINATION AND
GENETIC PRIVACY IN A COMPARATIVE PERSPECTIVE INTERSENTIA METRO TABLE OF
CONTENTS TABLE OF CONTENTS V LIST OF AUTHORS XI CHAPTER 1 INTRODUCTION 1
JANNEKE GERARDS CHAPTER 2 GENERAL ISSUES CONCERNING GENETIC INFORMATION
5 1. INTRODUCTION 5 2. GENETICS EXCEPTIONALISM AND THE DEFINITION OF
GENETIC INFORMATION 5 2.1. GENETIC INFORMATION AND OTHER HEALTH
INFORMATION; THE CASE FOR GENETICS EXCEPTIONALISM 5 2.2. DEFINITION OF
GENETIC INFORMATION 11 3. INTERESTS INVOLVED IN PROTECTION OF GENETIC
INFORMATION 12 3.1. INTRODUCTION: INDIVIDUAL GENETIC PRIVACY AND
NONDISCRIMINATION INTERESTS 12 3.2. (PRIVATE) INSURANCE 14 3.2.1.
ADVANTAGES OF UNRESTRICTED ACCESS TO GENETIC INFORMATION 14 3.2.2.
DISADVANTAGES OF UNRESTRICTED ACCESS TO GENETIC INFORMATION 17 3.3.
EMPLOYMENT 18 4. REGULATING GENETIC INFORMATION: GENERAL ISSUES 19 4.1.
INTRODUCTION 19 4.2. WHAT AREAS SHOULD BE REGULATED? 20 4.3. LEVEL OF
REGULATION: REGULATION BY FEDERAL/SUPRANATIONAL OR NATIONAL AUTHORITIES?
20 4.4. REGULATIVE POSSIBILITIES 21 4.5. PRIVACY OR NONDISCRIMINATION
APPROACH, OR A COMBINATION OF BOTH? 23 V TABLE OF CONTENTS 4.6. FLEXIBLE
OR RIGID APPROACH; WIDE OR NARROW EXCEPTION CLAUSES? 24 5. CONCLUSION 26
AALT-WILLEM HERINGA CHAPTER 3 INTERNATIONAL AND NATIONAL LEGAL
INSTRUMENTS 27 1. INTRODUCTION 27 2. GLOBAL STANDARD SETTING 28 3.
EUROPEAN PROVISIONS: COUNCIL OF EUROPE AND EU 31 3.1. COUNCIL OF EUROPE
31 3.1.1. ARTICLE 8 ECHR 31 3.1.2. ARTICLE 14 AND PROTOCOL NO. 12 ECHR
37 3.1.3. OTHER COUNCIL OF EUROPE TREATIES 37 3.2. THE PERSONAL DATA
CONVENTION 40 3.3. THE EUROPEAN UNION 41 4. FINDINGS 45 HELEENJANSSEN
CHAPTER 4 GENETIC INFORMATION IN EUROPEAN STATES 47 1. INTRODUCTION 47
1.1. GENETIC DISCRIMINATION IN EMPLOYMENT AND INSURANCE 48 1.1.1.
INSURANCE 48 1.1.2. EMPLOYMENT 49 1.1.3. THE PROBLEM WITH THE USE OF
GENETIC INFORMATION: CAUSE FOR GENETIC DISCRIMINATION 49 1.1.4. THE
PROBLEM WITH GENETIC INFORMATION: LOSS OF SELF-DETERMINATION WITH REGARD
TO PERSONAL DATA 50 1.2. DEFINITION OF THE PROBLEM 51 1.3. WORK PLAN AND
APPROACH 52 2. ELABORATION OF GENETIC PRIVACY AND GENETIC DISCRIMINATION
53 2.1. ADVANCE AND UNCERTAINTY IN GENETICS 53 2.1.1. PREDICTABILITY 53
2.2. GENETIC DISCRIMINATION AND OTHER FORMS OF DISCRIMINATION 54 2.2.1.
THE PRINCIPLE OF NON-DISCRIMINATION 54 2.2.2. GENETIC AND OTHER KINDS OF
DISCRIMINATION 55 2.2.3. EMPLOYMENT RELATIONSHIPS 56 2.2.4. INSURANCE:
ACTUARIAL FAIRNESS 57 TABLE OF CONTENT; 2.3. GENETIC PRIVACY AND OTHER
PERSONAL PRIVACY 57 2.3.1. GENETIC INFORMATION: PERSONS AFFECTED 57
2.3.2. OTHER PERSONS WITH INTEREST IN GENETIC PRIVACY 58 3. THE LEGAL
SYSTEMS 59 3.1. AUSTRIA 59 3.2. BELGIUM 61 3.3. FRANCE 64 3.4. GERMANY
66 3.5. GREECE 71 3.6. IRELAND 74 3.7. ITALY 17 3.8. NORWAY 80 3.9.
PORTUGAL 81 3.10. SWITZERLAND 82 3.11. UNITED KINGDOM 88 4. OVERVIEW AND
CONCLUSIONS 91 4.1. OVERVIEW 91 4.1.1. LEGISLATION ON GENETIC
INFORMATION 92 4.2. THE NECESSITY OF GENETICS LEGISLATION 94 4.3.
CHOICES OF LEGISLATION TECHNIQUES 98 4.3.1. NATIONAL OR INTERNATIONAL
PROTECTION OF GENETIC INFORMATION? 100 4.3.2. PROTECTION BY INSERTING
RULES IN EXISTING LEGISLATION OR ADAPTING NEW LEGISLATION? 100 4.3.3.
PROTECTION OF GENETIC INFORMATION BY PRIVACY OR DISCRIMINATION REGULA-
TION, OR BOTH? 102 JANNEKE GERARDS CHAPTER 5 REGULATION OF GENETIC
INFORMATION IN THE UNITED STATES 105 1. INTRODUCTION 105 2.
PARTICULARITIES OF THE AMERICAN SYSTEM 107 2.1. THE FEDERAL SYSTEM AND
THE RELATIONSHIP BETWEEN FEDERAL GOVERNMENT AND STATES 107 2.2. THE
AMERICAN SYSTEM OF HEALTH INSURANCE 114 2.2.1. INTRODUCTION 114 2.2.2.
INDIVIDUAL AND GROUP HEALTH INSURANCE 115 2.2.3. SELF-INSURED EMPLOYERS
AND HEALTH PLANS 117 2.2.4. GOVERNMENT-SPONSORED (PUBLIC OR SOCIAL)
HEALTH INSURANCE PLANS 120 2.2.5. CONSEQUENCES OF THE CHARACTERISTICS OF
THE AMERICAN INSURANCE SYSTEM FOR THE DEBATE ABOUT GENETIC INFORMATION
121 VII TABLE OF CONTENTS 2.3. THE AMERICAN ACADEMIC DEBATE ABOUT
GENETIC PRIVACY AND DISCRIMINA- TION 123 2.3.1. INTRODUCTION 123 2.3.2.
GENETIC INFORMATION AND OTHER MEDICAL OR HEALTH INFORMATION 124 2.3.3.
DEFINITION OF GENETIC INFORMATION 129 2.3.4. ACCESS TO AND USE OF
GENETIC INFORMATION BY HEALTH INSURANCE COMPANIES 130 2.3.5. NECESSITY
OF GENETICS LEGISLATION - OTHER ARGUMENTS 138 2.4. BASIC PRINCIPLES FOR
LEGISLATION CONCERNING GENETIC PRIVACY AND GENETIC DISCRIMINATION 141
2.4.1. INTRODUCTION 141 2.4.2. WHAT FIELDS/BUSINESSES SHOULD BE
REGULATED? 141 2.4.3. PROTECTION BY EXISTING LEGISLATION OR BY NEW,
SPECIFIC LEGISLATION? 143 2.4.4. PROTECTION ON THE FEDERAL OR STATE
LEVEL? 143 2.4.5. GENERAL, FLEXIBLE REGULATION OR SPECIFIC REGULATION
PROVIDING FOR NARROW EXCEPTIONS? 144 2.4.6. PROHIBITION OF
DISCRIMINATION, PROTECTION OF PRIVACY, OR BOTH? 147 2.4.7. OTHER
RECOMMENDATIONS 150 3. FEDERAL LEGISLATION RELATING TO GENETIC
DISCRIMINATION AND PRIVACY IN THE FIELD OF EMPLOYMENT AND INSURANCE 153
3.1. INTRODUCTION 153 3.2. EXISTING FEDERAL LEGISLATION RELATING TO
DISCRIMINATION IN THE FIELD OF INSURANCE AND/OR EMPLOYMENT 153 3.2.1.
THE AMERICANS WITH DISABILITIES ACT (ADA) 153 3.2.2. TITLE VII OF THE
CIVIL RIGHTS ACT 1964 168 3.2.3. THE EMPLOYEE RETIREMENT INCOME SECURITY
ACT (ERISA) 171 3.2.4. THE HEALTH INSURANCE PORTABILITY AND
ACCOUNTABILITY ACT OF 1996 (HIPAA) 173 3.2.5. THE HIPAA PRIVACY
REGULATION OF 2001 178 3.2.6. THE GENETIC EXECUTIVE ORDER 13145 180
3.2.7. CONSTITUTIONAL PROTECTION OF GENETIC PRIVACY 184 4. PROPOSED
FEDERAL LEGISLATION 189 4.1. GENERAL OVERVIEW 189 4.2. DESCRIPTION OF
THE BILLS RELATING TO GENETIC INFORMATION INTRODUCED BY THE 108*
CONGRESS 191 4.2.1. THE GENETIC INFORMATION NONDISCRIMINATION ACT OF
2003 (S. 1053 SE) 191 4.2.2. THE GENETIC NONDISCRIMINATION IN HEALTH
INSURANCE AND EMPLOYMENT ACT (H.R. 1910) 201 5. CONCLUSION 207 5.1.
INTRODUCTION 207 5.2. IS SPECIFIC GENETICS LEGISLATION REALLY NECESSARY?
208 TABLE OF CONTENTS 5.3. TO WHAT EXTENT SHOULD GENETIC OR OTHER HEALTH
INFORMATION BE PROTECTED? 211 5.4. BASIC PRINCIPLES OF LEGISLATION
CONCERNING GENETIC OR OTHER HEALTH INFORMATION 213 5.4.1. INTRODUCTION
213 5.4.2. WHAT FIELDS SHOULD BE REGULATED? 213 5.4.3. PROTECTION BY
EXISTING LEGISLATION OR BY NEW, SPECIFIC LEGISLATION? 214 5.4.4.
PROTECTION ON THE FEDERAL OR STATE LEVEL? 215 5.4.5. PROHIBITION OF
DISCRIMINATION, PROTECTION OF PRIVACY, OR BOTH? 217 5.4.6. GENERAL,
FLEXIBLE REGULATION OR SPECIFIC REGULATION PROVIDING FOR NARROW
EXCEPTIONS? 218 5.5. FINAL REMARKS 219 JANNEKE GERARDS CHAPTER 6
CONCLUSIONS 221 1. INTRODUCTION 221 2. GENETIC AND OTHER HEALTH
INFORMATION; DEFINITION OF GENETIC INFORMATION 223 2.1. GENETIC
INFORMATION AND OTHER HEALTH INFORMATION 223 2.2. DEFINITION OF GENETIC
INFORMATION 226 3. REGULATING GENETIC INFORMATION 227 3.1. INTRODUCTION
227 3.2. WHAT AREAS SHOULD BE REGULATED? 227 3.3. PROTECTION BY EXISTING
OR NEW LEGISLATION? 229 3.4. LEVEL OF REGULATION: REGULATION BY
FEDERAL/SUPRANATIONAL OR NATIONAL AUTHORITIES? 231 3.5. REGULATORY
POSSIBILITIES 233 3.6. PRIVACY OR NONDISCRIMINATION APPROACH, OR A
COMBINATION OF BOTH? 235 3.7. BALANCE OF INTERESTS: CONTENTS OF
PROHIBITORY MEASURES AND EXCEPTION CLAUSES 237 IX
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| spellingShingle | Gerards, J. H. 1976- Heringa, Aalt W. Janssen, H. L. Genetic discrimination and genetic privacy in a comparative perspective |
| title | Genetic discrimination and genetic privacy in a comparative perspective |
| title_auth | Genetic discrimination and genetic privacy in a comparative perspective |
| title_exact_search | Genetic discrimination and genetic privacy in a comparative perspective |
| title_full | Genetic discrimination and genetic privacy in a comparative perspective J. H. Gerards ; A. W. Heringa ; H. L. Janssen |
| title_fullStr | Genetic discrimination and genetic privacy in a comparative perspective J. H. Gerards ; A. W. Heringa ; H. L. Janssen |
| title_full_unstemmed | Genetic discrimination and genetic privacy in a comparative perspective J. H. Gerards ; A. W. Heringa ; H. L. Janssen |
| title_short | Genetic discrimination and genetic privacy in a comparative perspective |
| title_sort | genetic discrimination and genetic privacy in a comparative perspective |
| url | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=014680200&sequence=000001&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA |
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