The patient's wish to die: research, ethics, and palliative care
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| Main Authors: | , , |
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| Format: | Book |
| Language: | English |
| Published: |
Oxford
Oxford University Press
[2015]
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| Subjects: | |
| Links: | http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=028407259&sequence=000003&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=028407259&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA |
| Item Description: | "Some parts of the book originated at a conference that the editors organized in June 2012 at the University of Basel in Switzerland" |
| Physical Description: | x, 264 Seiten Diagramme |
| ISBN: | 9780198713982 |
Staff View
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Record in the Search Index
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Wish to die statements are becoming a frequent phenomenon in terminally
ill patients. Those confronted by these statements need to understand the complexity
of such wishes, so that they can respond competently and compassionately to the requests.
If misunderstood, the statements can be taken at face-value and the practitioner may not
recognize that a patient is in fact experiencing ambivalent feelings at the end of life,
or they may misinterpret the expressed wish to die as a sign of clinical depression.
Public debate about the morality and ethics of various end-of-life care options
has exploded in recent years. However, it has never been sensitive to the Finer aspects
of clinical reality or the experiences of patients. The Patient's Wish to Die: Research, Ethics,
and Palliative Care brings together that reality and the patient's voice, combining them
with different research approaches. It presents the best available knowledge and research
methodologies about patients' wishes at the end of life, together with a series of ethical
views and a discussion about the clinical implications for palliative care. The book presents
material in an open and unbiased manner whilst remaining sensitive to the spiritual
and existential dimensions of dying, and to the different cultural views that
provide meaning to the individual.
Written by leading specialists and ethics scholars from around the world,
including palliative care practitioners and end-of-life scholars from countries where
assisted dying practices are legalized and from those where it is not. The Patient's Wish
to Die: Research, Ethics, and Palliative Care will prove essential reading for all
those working or studying in the field of palliative care.
Contents
Contributors ix
Part I Introduction
1 Why it is important to know about patients’ wishes to die 3
Christoph Rehmann-Sutter, Heike Gudat, and Kathrin Ohnsorge
Part N Research
2 Illness narratives» meaning making, and epistemic injustice in research
at the end of life 15
Yasmin Gunaratnam
3 Expressed desire for hastened death in seven patients living with
advanced cancer: a phénoménologie inquiry 29
Nessa Coyle and Lois Sculco
4 Comment on ‘Expressed desire for hastened death: a phénoménologie
inquiry’ 10 years later 45
Nessa Coyle
5 Euthanasia (requests) after the implementation of the euthanasia
law in Belgium in 2002. Results of empirical studies in Flanders,
Belgium 47
Luc Deliens and Tinne Smets
6 The journey to understanding the wish to hasten death 61
Tracy Schroepfer
7 The desire for hastened death in patients in palliative care 71
Rinat Nissim, Christopher Lo, and Gary Rodin
8 Intentions, motivations, and social interactions regarding a wish
to die 81
Kathrin Ohnsorge
9 Acting on a wish to die at the end of life: the Swiss situation 97
Alexandre Mauron
10 Understanding older peoples wish to die 107
Bregje Onwuteaka՜Philipsen
11 Dialogue intermezzo: I 119
viii
CONTENTS
Part III Ethics
12 Caring and killing in the clinic: the argument of
self-determination 125
Lars Johan Materstvedt
13 Towards responsive knowing in matters of life and death 139
Marian A. Verkerk
14 Dealing with dilemmas around patients’ wishes to die: moral case
deliberation in a Dutch hospice 149
Guy Widdershoven, Margreet Stolper, and Bert Molewijk
15 End-of-life ethics from the perspectives of patients* wishes 161
Christoph Rehmann-Sutter
16 Dialogue intermezzo: II 171
Part IV Practice
17 Issues of palliative medicine in end-of-life care 177
H. Christof Müller-Busch
18 Spirituality at the bedside: negotiating the meaning of dying 191
Settimio Monteverde
19 Communication of wishes to die 203
Heike Gudaty Christoph Rehmann-Sutter, and Kathrin Ohnsorge
20 From understanding to patient-centred management: clinical pictures
of a wish to die 217
Heike Gudat
21 What does the wish to hasten death mean for the palliative patient?
Clinical implications 231
Cristina Monforte-RoyOy Albert Balaguer, and Christian
Villavicencio-Châvez
Part V Conclusion
22 Concluding dialogue 245
Author index 249
Subject index 255 |
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| spelling | The patient's wish to die research, ethics, and palliative care edited by Christoph Rehmann-Sutter, Heike Gudat, and Kathrin Ohnsorge Oxford Oxford University Press [2015] © 2015 x, 264 Seiten Diagramme txt rdacontent n rdamedia nc rdacarrier "Some parts of the book originated at a conference that the editors organized in June 2012 at the University of Basel in Switzerland" Ethik (DE-588)4015602-3 gnd rswk-swf Palliativmedizin (DE-588)7730202-3 gnd rswk-swf Palliativpflege (DE-588)7730204-7 gnd rswk-swf Sterbehilfe (DE-588)4077877-0 gnd rswk-swf (DE-588)1071861417 Konferenzschrift 2012 Basel gnd-content Sterbehilfe (DE-588)4077877-0 s Ethik (DE-588)4015602-3 s Palliativmedizin (DE-588)7730202-3 s Palliativpflege (DE-588)7730204-7 s DE-604 Rehmann-Sutter, Christoph 1959- (DE-588)113592744 edt aut Gudat, Heike 1964-2025 (DE-588)1089799454 edt aut Ohnsorge, Kathrin edt aut Universität Basel Sonstige (DE-588)36146-X oth Digitalisierung UB Regensburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=028407259&sequence=000003&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Klappentext Digitalisierung UB Regensburg - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=028407259&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis |
| spellingShingle | Rehmann-Sutter, Christoph 1959- Gudat, Heike 1964-2025 Ohnsorge, Kathrin The patient's wish to die research, ethics, and palliative care Ethik (DE-588)4015602-3 gnd Palliativmedizin (DE-588)7730202-3 gnd Palliativpflege (DE-588)7730204-7 gnd Sterbehilfe (DE-588)4077877-0 gnd |
| subject_GND | (DE-588)4015602-3 (DE-588)7730202-3 (DE-588)7730204-7 (DE-588)4077877-0 (DE-588)1071861417 |
| title | The patient's wish to die research, ethics, and palliative care |
| title_auth | The patient's wish to die research, ethics, and palliative care |
| title_exact_search | The patient's wish to die research, ethics, and palliative care |
| title_full | The patient's wish to die research, ethics, and palliative care edited by Christoph Rehmann-Sutter, Heike Gudat, and Kathrin Ohnsorge |
| title_fullStr | The patient's wish to die research, ethics, and palliative care edited by Christoph Rehmann-Sutter, Heike Gudat, and Kathrin Ohnsorge |
| title_full_unstemmed | The patient's wish to die research, ethics, and palliative care edited by Christoph Rehmann-Sutter, Heike Gudat, and Kathrin Ohnsorge |
| title_short | The patient's wish to die |
| title_sort | the patient s wish to die research ethics and palliative care |
| title_sub | research, ethics, and palliative care |
| topic | Ethik (DE-588)4015602-3 gnd Palliativmedizin (DE-588)7730202-3 gnd Palliativpflege (DE-588)7730204-7 gnd Sterbehilfe (DE-588)4077877-0 gnd |
| topic_facet | Ethik Palliativmedizin Palliativpflege Sterbehilfe Konferenzschrift 2012 Basel |
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